Officially back, Your experience with AFP screening?

Hi everyone. I'm 12w3d and I finally feel comfortable coming back to the boards. After my first early m/c I was nervous about this one. Is the first tri over at 12 weeks or 14 weeks?  


I have the option to do the AFP screening and the doctor tells me that 99% of his patients opt to do it. I've heard that the false positive rate is quite high and I know that I would not terminate and would not have amnio.  DH agrees with me on that but thinks it would be helpful to mentally prepare for the future.  I am a stressed worried person to begin with and I know if I get a positive (even though there is a high probability that it is false positive) that I will freak out for the remainder of my pregnancy. Have most of you gone through with the screening?  What has your experience been if you did or did not do it?  TIA!

Posted on March 12, 2012 at 8:49 am
JSRSWedding
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(8) Comments

Pink.July.Bride2010
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Pink.July.Bride2010

We did it.  I've never heard that there is a high false/positive rate.  Even if it came back positive it's not a guarantee.  My sisters came back with a 1 in a 100 chance my nephew was going to have downs.  Today he is 7, perfectly healthy and extremely smart.  You wont know until the baby is born.  You could mentally prepare for something and then your baby be born perfectly fine.  Don't stress about things in pregnancy you can not control.  It will only make you go crazy and stress isn't good for your baby.


 

Posted on March 12, 2012 at 9:41 am
Anais_B
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Congratulations on your 12 weeks and 3 days - it must feel like such a relief.


I had the blood test to see the likelihood of Down's syndrome - I think that's the same as the AFP (sorry if I got that wrong).


Routine scans might help you get a slightly more accurate picture if results did suggest an increased risk.  The nuchal fold thickness and certain cardiac problems (both visible in an U/S scan) would be suggestive of Down's syndrome.  (I had my blood test results and the nuchal fold results combined to give a more accurate idea of risk).


My thinking was that I would rather know - even if it was just knowing that there was an increased risk, but it's such a personal decision it will be different for everyone.  Like you I don't think I would have wanted an amnio.  DH wanted me to have the test because given our ages the chances of us having a baby with Down's syndrome were very small - he figured that the most likely outcome would be that we got a negative result and were reassured.  


 


 


 


 

Posted on March 12, 2012 at 10:30 am
julie4423
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I opted to not do any optional testing with any of 4 pregnancies, and I'm totally happy with it. I just didn't see the need.

Posted on March 12, 2012 at 11:52 am
theresaobyrne
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theresaobyrne

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We also opted out. I can totally understand why people would.
Posted on March 12, 2012 at 1:47 pm
Canooknic
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We didn't do it, we had the same thought process as you that we were keeping them either way, even a sick baby would still be our baby.
I totally understand why people do have it, especially if they are a bit older or their is genetic history to be concerned about, it give people a chance to get prepared for dealing with Down's etc
Posted on March 13, 2012 at 3:51 am
FarmBride
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Our choice is different because I am older and have a chronic pain syndrome we wanted to know.


My nuchal fold came in at high end of normal but combined with the blood test, age factor we came out with a 1:6 chance Baby Cheese had Downs. We were devastated and had to wait a long 3 weeks until I could have an amnio, we decided not to have CVS as has risk of a no result and would have to repeat doubling the chance of a miscarriage. The day after the amnio I leaked and felt so guilty for doing the test, next day no leaks and a little the next day. The results came back all clear a huge relief but a roller coaster of emotions. H x

Posted on March 13, 2012 at 9:11 am
clipscomb1987
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We did it because we wanted the sonogram :) 

Posted on March 15, 2012 at 2:52 am
jackieg
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We did it, then CVS, baby had Down Syndrome :(
Posted on March 17, 2012 at 7:10 am

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