PCOS? Am I doing enough?

Hi ladies!  I'm new to the group.  I've been looking on for a bit, but decided it's time to start taking charge of my health.  FI and I are not currently TTC, but I was recently "diagnosed" with PCOS.  


In November, I went off of BC for the first time in 10 years.  My insurance ran out...so I thought I'd just try life without BC.  I had a period in December, but then nothing...  My back started to break out, my face broke out, hair started popping up in really embarassing places, weight is piling on to my stomach and thigh areas.  I've been pretty depressed and self-conscious about my looks.  I saw my Gyno who did blood work after mentioning it could possibly be PCOS...cut to a few weeks later and she is on a mission trip so the nurse calls and says my Testosterone levels were high and it looked like PCOS...she'd have the Dr. call.  But my insulin and DHEA look normal.  Dr calls, but I'm going to see her that day (think Dr. needs to get on her game...).  Dr puts me on provera to start my period and then start taking BC again to level out my hormones.  She also gives me another blood test and calls to tell me that my Testosterone levels are even higher than before (80s).  But just says to continue with the BC for a couple of months and then she will retest me.  


I'm just uncomfortable with the way things are being handled.  She assures me that PCOS is the easiest syndrome to treat for fertility issues.  But she didn't suggest an ultrasound, didn't explain my blood work well (what is DHEA? and what does "normal" mean?), doesn't suggest I see an endiconologist, etc.  Am I doing enough for my health??  


I know we are not TTC, but the thought of the possibility that conceiving may not be in my future kills me. 


And as a more vain issue, I do not want to gain anymore weight.  I have had issues with becoming obsessive about my weight in the past.  I get mad at myself for eating.  I don't even eat much or often, and yet I seem to be getting thicker.  Not to mention the acne and hair...


Thanks for letting me vent, ladies.  My family doesn't quite understand PCOS...nor do I.  So they haven't been able to lend much support or advice.  What are your thoughts?

Posted on July 14, 2011 at 8:15 am
Miss_Jules
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ValleyGirl77
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I'm not much help because I've never been diagnosed with it but here's what I found...


http://women.webmd.com/tc/polycystic-ovary-syndrome-pcos-treatment-overview


Some of the ladies here are more familiar with PCOS, maybe the'll chime in.  I do recommend that you see and endocrinologist if you don't feel your doctor is doing much for you. :)


 


 

Posted on July 14, 2011 at 10:20 am
Perez_2010
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I agree that you should see an Endocrinologist.  He/she will run more tests to determine what type of PCOS you have, and will definitely be more knowledgeable and explain things better.  Since you're not TTC now, I would ask to start taking Metformin daily (if you're insulin resistant).  It may help kick-start your system so that you ovulate normally.

Posted on July 15, 2011 at 5:31 am
dodgercpkl
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Yep I can definitely recommend an endocrinologist.  I've just started seeing one and I love how she's explaining things and the solid battery of tests she's had me do!


Another thing I'd recommend based on personal experience:  Find a new OBGYN that you can feel comfortable with and who will explain things in a manner that you can understand.  I feel like it's made a WORLD of difference for me in just how I feel about things!  My previous OBGYN didn't make me feel comfortable.  For one thing she would jump into doing pap smears without even so much as a how-do-you-do and she'd do them every 6 months.  For another, I didn't feel like the communication was there.  She did blood and urine work on me and told me my hormones were fine, but couldn't or wouldn't tell me why I wasn't having a period.  


I changed to an OBGYN that came highly recommended by a work friend who'd also had fertility issues.  I'M SO GLAD I DID!  The new OBGYN actually TALKED to me!  My first visit was over TWO hours because she asked me in-depth questions, listened to the answers I gave, and then asked me more questions based on the answers I'd given!  She's the one who recommended my endocrinologist to me as well!  


My previous OBGYN had never so much as mentioned PCOS let alone the possibility of it.  The new one, after listening to my answers, mentioned it, explained it and explained why she thought I probably had it.  She was shocked that my old OBGYN had me doing pap smears every 6 months even though they were normal results and informed me that when I was given the Provera by my old OBGYN I should have been given a prescription that wasn't just once but for every 6 weeks until my period came naturally on its own!  She also told me that she didn't like Provera as much as Prometrium because it's not something you can take if you are pregnant, so if you find out you are pregnant after the fact then it could end up harming your unborn baby, whereas Prometrium can be taken safely while pregnant because it's a bio-identical - meaning something that is very very similar to something that your body would naturally produce.


I'm at the beginning of this stage of my journey right now, but I feel so relieved to have doctors that treat me like a human that needs answers and do their best to explain things to me and most of all that LISTEN to me!  I can't tell you just how amazing that feels to me.  I feel like I'm catching glimpses of the roadmap to my body and that I finally have a direction to head in rather then wandering blindly.


Sorry for my long winded post.  Hopefully I explained myself well enough!  I just know that I read your post and it felt like you were something very similar to what I did last year with my old OBGYN.  

Posted on August 10, 2011 at 12:52 pm

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